WORLD Haemophilia Day will be marked with a fundraising cycle ride by an ‘inspirational’ five-year-old Cam boy who suffers with a severe form of the disease.
Diagnosed at just five months old with Severe Haemophilia A which means that his blood does not properly clot, Camron Mourton, a pupil at Cam Woodfield Infant School, has to have daily injections to manage the condition.
Despite this and also having had a number of serious bleeds and two life-threatening infections over the years Camron’s mum Sarah said that he still smiles all the time.
She said: “When Camron was five months old he was diagnosed with this condition and to say we were scared was an understatement.
“I had no idea what the future would hold for him and it has changed our lives.
“Despite the daily injections, the endless joint, muscle and tissue bleeds and the two life-threatening port infections he has had to endure, he always smiles.”
On Monday, to coincide with World Haemophilia Day, Camron and his seven-year-old sister Chloe will cycle from their school, to the Tudor Arms near Slimbridge to raise money for The Haemophilia Society.
Sarah added: “Camron is my inspiration. His strength and determination have astounded me and I've watched him take everything he has had to endure in his stride.
“So the bike ride we will be completing is to give something back to The Haemophilia Society for all they do for the families of sufferers.”
To donate to Camron's cause visit justgiving.com/fundraising/Sarah-Jayne-Mourton
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