An Almondsbury boy is being treated for condition so rare it affects just one in a million people.

One-year-old Noah Jackson has primary hyperoxaluria type one, which means his liver is missing one enzyme.

Noah’s condition means he produces crystals called calcium oxalate which, if left untreated, would slowly calcify his organs.

He has to visit Bristol Royal Hospital for Children six days a week.

There Noah has haemodialysis for three hours before returning home.

He is only the second patient to be treated for the condition in Bristol hospitals.

Noah’s family, parents Beccy and Garth and half-siblings Coel, eight, and Lorelei, six, are now supporting Above and Beyond, the official charity for Bristol city centre hospitals.

They are rallying people to sign up to the charity’s Bristol to Paris Cycle Challenge, a 470km bike ride over four days next September.

Beccy said: “Your support will make a real difference. Money raised could buy toys for the wards or Christmas presents for patients and their families, making long stays in hospital more comfortable for poorly patients and their loved ones.

The aim is to raise £150,000 to improve patient care at Bristol city centre hospitals.

Beccy said: “It’s hard coming into hospital six days a week. It’s not what you think will happen when you have a baby, but the care and treatment we have received is second to none.

“The staff on the Lighthouse Ward have become our family and our little boy would not be here without them.”

Noah’s condition is so rare that it took doctors three weeks to diagnose him, after sending blood samples across the country.

Beccy added: “Garth and I are both carriers of the gene but it’s dormant in us. Noah had a one in four chance of getting the condition with the ‘bad’ gene from both of us, and it would be the same if we had any more children.

“Noah was diagnosed with the condition when he was 11 weeks old.

“He had no symptoms, but I had a gut feeling something wasn’t right.

“After a trip to North Wales visiting family, Noah was vomiting blood so we rushed to hospital.

“They did some blood tests and when they came back it was bad news. I knew something was wrong, but didn’t think he would be dying.”

Noah had a liver transplant in June at Birmingham Children’s Hospital. Once he is bigger and stronger he will have a kidney transplant.

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